Sharon Terry
President and CEO, Genetic Alliance
President and CEO, Genetic Alliance
Sharon F. Terry is President and CEO of Genetic Alliance, an enterprise engaging individuals, families and communities to transform health. She co-founded PXE International, a research advocacy organization for the genetic condition pseudoxanthoma elasticum (PXE), after her two children were diagnosed with PXE in 1994. She co-discovered the ABCC6 gene and developed a diagnostic test. An Ashoka Fellow, Terry has authored 150 peer-reviewed articles and has received international recognition for her work. She presented a TED Talk based on her story. At the forefront of consumer participation in genetic research, services and policy, she serves in a leadership role on many major international and national organizations.
On February 26, 2020
On February 26, 2020
On February 26, 2020
On February 26, 2020
On February 26, 2020
On February 26, 2020